Back to list of Priority Setting Partnerships (formerly known as Working Partnerships)
Vitiligo
A JLA Priority Setting Partnership
The JLA is a partner in a new independent research project that is being supported through a programme grant funded by the National Institute for Health Research. The project is called Setting Priorities and Reducing Uncertainties for People with Skin Disease, or SPRUSD for short. It is being co-ordinated by the Centre of Evidence Based Dermatology in Nottingham. The Centre incorporates the NLH Skin Disorders Specialist Library, the Cochrane Skin Group and the UK Dermatology Clinical Trials Network (UKDCTN).
The project is ambitious, with several streams of work, including eczema and vitiligo, and will last 5 years. As part of the project, the Vitiligo Society and its members will identify areas of uncertainty about treating this common skin disorder, in which patches of skin lose their colour. These uncertainties will all be published in DUETs, along with uncertainties from other sources. The JLA will then facilitate a priority setting process that will include people with vitiligo and their parents and carers, health professionals and researchers, to agree a top ten list of research questions. For further information please contact Sally Crowe (sally@crowe-associates.co.uk)
The Vitiligo survey is now closed. The results of this survey will be used to develop a list of the TOP 10 most important research questions in the field of vitiligo”. The results will be published here due in due course.
Reports and Articles related to the progress of the Vitiligo Priority Setting Partnership:
Dispatches - The magazine of the vitiligo society number 51 July 2009
Setting priorities and reducing uncertainties for people with skin disease (SPRUSD). Article by Clare Lushey, published in Dispatches issue 50, March 2009 (Page 14).
SPRUSD: Research priority for 2009: An opportunity for members to be involved. Article by Sally Crowe, published in Dispatches issue 49, November 2008 (Page 13).
The JLA - An important initiative in fostering good research practices in all spheres of medicine. Article by Maxine Whitton, published in Skin Care Campaign News issue 32, November 2005 (Page 9).