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THE JAMES LIND ALLIANCE

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Stroke in Scotland
A JLA Priority Setting Partnership

Life after stroke in Scotland: Research Priorities
The Stroke in Scotland Partnership worked together with a number of different organisations to work out research priorities to do with life after stroke in Scotland. It was coordinated by DORIS (Database of Research in Stroke), which is based at the Nursing Midwifery & Allied Health Professions Research Unit at Glasgow University, in partnership with the Cochrane Stroke Group and the James Lind Alliance. In 2011 they collected questions about life after stroke from stroke survivors, carers and health professionals. You, or your organisation, may have submitted questions to them.

They then combined all the questions which they received from stroke survivors, carers and health professionals. If a question had already been answered by research it was removed from the list. Questions that were similar were merged together, and the wording slightly altered on other questions to try to make them as clear as possible. This left them with 226 different questions which stroke survivors, carers and health professionals asked about the effects of a treatment, service or activity.

The partnership invited participants and organisations, to look through the 226 questions which had been gathered, and asked them to pick the 10 questions which they felt most important for future research. The top 10s received from the participants were combined with those of other stroke survivors, carers and health professionals. From this exercise a list of 24 top questions was produced and discussed at the Priority Setting Meeting which was held on the 16th November 2011. At this meeting the overall Top 10 research priorities for life after stroke were agreed and will be used to influence what future research is carried out. For an overview of what happened on the day please click here.

The top 10 research priorities for stroke in Scotland were agreed by patients, carers and clinicians as follows:

1. What are the best ways to improve cognition after stroke?

2. What are the best ways of helping people come to terms with the long term consequences of stroke?

3. What are the best ways to help people recover from aphasia?

4. What are the best treatments for arm recovery and function, including visual feedback, virtual reality, bilateral training, repetitive task training, imagery/mental practice, splinting, electromechanical and robot-assisted arm training and botulinum toxin.

5. What are the best ways to treat visual problems after stroke?

6. What are the best ways to manage and/or prevent fatigue?

7. What are the best treatments to improve balance, gait and mobility, including physiotherapy, gait rehabilitation, visual and auditory feedback, electrical stimulation, different types of ankle foot orthoses and electromechanical assisted gait training?

8. How can stroke survivors and families be helped to cope with speech problems?

9. What are the best ways to improve confidence after stroke, including stroke clubs/groups, offering support, one-to-one input and re-skilling?

10. Are exercise and fitness programmes beneficial at improving function and quality of life and avoiding subsequent stroke?

Glossary of stroke terms

BACKGROUND TO THE PARTNERSHIP

For further information on either DORIS (Database Of Research In Stroke) or the James Lind Alliance priority setting partnership please contact Alex Pollock (alex.pollock@gcal.ac.uk).

Life after Stroke in Scotland Priority Setting Partnership - PROTOCOL 2010.
The purpose of the protocol is to set out the aims, objectives and commitments of the Life after Stroke in Scotland Priority Setting Partnership (PSP) and the basic roles and responsibilities of the partners therein. To see the Protocol click here

PUBLICATIONS

Pollock A, St George B, Fenton M, Crowe S, Firkins L (2013). Development of a new model to engage patients and clinicians in setting research priorities (from the Stroke in Scotland PSP) Journal of Health Services, Research and Policy Article

Pollock A, St George B, Fenton M, Firkins L (2012). Top ten research priorities relating to life after stroke. The Lancet Neurology, Vol. 11, Issue 3, P209. Article

Pollock A, St George B, Fenton M, Firkins L (2012). Top 10 research priorities relating to life after stroke - consensus from stroke survivors, caregivers, and health professionals. Int J Stroke 2012 Dec 11. doi:10.1111/j.1747-4949.2012.00942.x Article

St George B, Pollock A, Fenton M, Crowe S, Firkins L (2012). Facilitating representative and equitable engagement of stroke survivors and health professionals in setting research priorities. International Journal of Stroke, December 2012, vol./is. 7/(27-28). Article

 

 



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