portrait of James Lind

THE JAMES LIND ALLIANCE

Tackling treatment uncertainties together

Search our website

 

Show all page content

Publications

This page contains links to articles and publications which mention or are are relevant to the work of the James Lind Alliance. Information on Research published by the JLA is here.

The following publications are either linked online or can be downloaded in PDF format:

  • Sandy Tyndale-Biscoe, Emma Malcolm, Vincent J. Gnanapragasam. Setting priorities for prostate cancer research. Trends in Urology & Men's Health 2012, vol 3 issue 1, p31-33. Article

  • Lophatananon A ,Tyndale-Biscoe S , Malcolm E , Rippon H, Holmes K, Firkins L, Fenton M , Crowe S , Stewart-Brown S, Gnanapragasam V and Muir K. (2011). The James Lind Alliance approach to priority setting for prostate cancer research: an integrative methodology based on patient and clinician participation. British Journal of Urology International, 2011, Vol 108, Issue 7, p 1040 – 1043. Article

  • Buckley S, Grant A, Glazener C. (2011). Case study: A patient-clinician collaboration that identified and
    prioritized evidence gaps and stimulated research development    . J Clin Epidemiol. August 2011. Article

  • Lloyd K, White J. (2011). Democratizing clinical research. Nature 474:277-278. Article
  • Cowan K. (2010). The James Lind Alliance—Tackling Treatment Uncertainties Together. Journal of Ambulatory Care Management 33;3:241–248. Article
  • Petit-Zeman S, Denegri S. (2010) Natural Ground for Medical Research Charities: Public and Patient Involvement in Research Funding. Journal of Ambulatory Care Management; v33:3:249-256. Article
  • Petit-Zeman S et al. (2010). The James Lind Alliance: tackling research mismatches. The Lancet 201;376:667-669. Article
  • Petit-Zeman S. (2010). Giving people what they want: Want to know which treatments work best? Try asking patients. Prospect p58 Article
  • Opar A. (2010). Lind guidelines offer a checklist for research priorities. Nature Medicine 16;6:620. Article
  • McClurg D. (2010) The James Lind Alliance and urinary incontinence. Journal of the Association of Chartered Physiotherapists in Women’s Health, Spring 2010, 106. Article
  • Elwyn G et al. (2010) Identifying and prioritizing uncertainties: patient and clinician engagement in the identification of research questions. J Eval Clin Pract. 2010 May 5. Article
  • Postgraduate Medical Education and Training Board (2010). A patient’s guide to doctors in training. This guide was developed in March 2010 by the Postgraduate Medical Education and Training Board (merged with the General Medical Council in April 2010) and the Academy of Medical Royal Colleges and its Patient Liaison Group. Guide
  • Halls E. (2010) Where are the clinicians when you need them? BMJ 2010;340:c1845. Article (PDF)
  • Buckley BS et al (2009) Reaching a consensus on research priorities in urinary incontinence. Nursing Times, online publication. Gaps in the evidence base in healthcare are common, and this is also the case for the management of urinary incontinence. The James Lind Alliance helped patients and clinicians to work together to identify and then prioritise gaps in the evidence base for managing this condition, producing a list of 10 research priorities. This article (PDF) outlines the process involved in reaching this consensus.
  • Fenton M, Brice A, Chalmers I. (2009) Harvesting and publishing patients’ unanswered questions about the effects of treatments. In: Littlejohns P, Rawlins M, eds. Patients, the public and priorities in healthcare. Abingdon, Oxon: Radcliffe, 2009, pp 165-180. To see full chapter click here (PDF) To access the entire book click the following link: http://www.radcliffe-oxford.com/books/bookdetail.aspx?ISBN=1846193877
  • Scadding J, Chalmers I. (2009) The James Lind Alliance: tackling treatment uncertainties together. RSM News, Issue 51, Spring 2009, p 11. Article (PDF)
  • Firkins L. (2008), Setting research priorities: a layman’s experience. BMJ 2008;337:a212. Article (PDF)
  • Public priorities for medical research and development (2008) 13 experts from the government and policy, clinical and patient organisations discussed clinical research at a roundtable discussion hosted by the Health Service Journal with the Association of the British Pharmaceutical Industry. The event aimed to address clinical priorities. To help inform the debate, ABPI commissioned Opinion Leader research to determine where the public believes clinical research priorities should lie, through a combination of survey and group discussion. To see the full HSJ article click here. To see the ABPI summary of research findings. Article (PDF)
  • Chalmers I. (2008) Confronting therapeutic ignorance: Tackling uncertainties about the effects of treatments will help to protect patients. BMJ 2008;337:a841. Article (PDF)
  • Quality of life: the patients' view (2007). HSCNEWS International 2007;39. Article (PDF)
  • Patients and the Future of Clinical Trials. (2007) HSCNEWS International 2007;38. Article (PDF)
  • Buckley B, Kennedy B, Murphy M. (2007) Barriers to effective care of incontinence. Forum March 2007:51-54. Article (PDF)
  • Buckley B, Grant A, Firkins L, Greene A, Frankau J. (2007) Working together to identify research questions. Continence UK 2007;1:1. Article (PDF)
  • Brown et al. (2006) How to formulate research recommendations. BMJ 2006;333:804. Article
  • Evans I, Thornton H, Chalmers I. (2006) Testing treatments: better research for better healthcare. London: British Library, 2006. pdf of this book freely available under a Creative Commons Licence, through www.jameslindlibrary.org
  • Lloyd K, Rose D, Fenton M. (2006) Identifying uncertainties about the effects of treatments for schizophrenia. Journal of Mental Health 2006;15(3):263-268. Article (PDF)
  • Firkins L (2006). The James Lind Alliance. GIG Today winter 2005/2006:5. Article (PDF)
  • Patients and researchers: tackling treatment uncertainty together. (2005) Health and Social Campaigners' News 2005;24:16-28. Article (PDF)
  • Chalmers I. (2005) The James Lind Alliance: Clinical trials registration. Health and Social Campaigners' News 2005;22:15-21. Article (PDF)
  • Whitton M. (2005) The James Lind Alliance: An important initiative in fostering good research practices in all spheres of medicine. Skin Care Campaign News 2005;32:9. SCC News Article (PDF)
  • Partridge N. Scadding J. (2004) The James Lind Alliance: patients and clinicians should jointly identify their priorities for clinical trials. Lancet 2004;364:1923-24. Article (PDF)
  • Chalmers I. (2004) Well informed uncertainties about the effects of treatments: how should clinicians and patients respond? BMJ 2004;328:475-6. Article (PDF)
  • Chalmers I. (2004) Managers should help to address important uncertainties about the effects of treatments. BAMM (Britsh Association of Medical Managers) NEWS June 2004:3-4. Article (PDF)
  • Confronting Important Uncertainties about the Effects of Treatments. (2004) Health and Social Campaigners' News 2004;5: Article(PDF)

 

The following are further relevant publication references:

  • Editorial. Dealing with Uncertainty. Clinical Evidence Issue 13. London: BMJ 2005.
  • Thornton H. Identifying patients' and clincians' priorities in cancer clinical trials. In Rawlins M, Littlejohns P, editors. Delivering Quality in the NHS 2005. Part Four: James Lind Alliance: identifying patients' and clinicians' priorities for therapeutic research. Oxford: Radcliffe Publishing,2005:62-66.
  • Oliver S. Involving the public in health technology assessment. In Rawlins M, Littlejohns P, editors. Delivering Quality in the NHS 2005. Part Four: James Lind Alliance: identifying patients' and clinicians' priorities for therapeutic research. Oxford: Radcliffe Publishing,2005:57-61.
  • Jobling R. Therapeutic research into psoriasis: patients' perspectives, priorities and interests. In Rawlins M, Littlejohns P, editors. Delivering Quality in the NHS 2005. Part Four: James Lind Alliance: identifying patients' and clinicians' priorities for therapeutic research. Oxford: Radcliffe Publishing,2005:53-56.
  • Arnold F. No commercial potential? (nullus pretii). In Rawlins M, Littlejohns P, editors. Delivering Quality in the NHS 2005. Part Four: James Lind Alliance: identifying patients' and clinicians' priorities for therapeutic research. Oxford: Radcliffe Publishing,2005:49-52.

>> Top of page
Copyright 2012 James Lind Alliance