Publications
The following publications can be downloaded:
McClurg D. The James Lind Alliance and urinary incontinence. Journal of the Association of Chartered Physiotherapists in Women’s Health, Spring 2010, 106. article (PDF)
Elwyn G et al. Identifying and prioritizing uncertainties: patient and clinician engagement in the identification of research questions. J Eval Clin Pract. 2010 May 5. article (PDF)
Halls E. Where are the clinicians when you need them? BMJ 2010;340:c1845. BMJ article (PDF)
Buckley BS et al (2009) Reaching a consensus on research priorities in urinary incontinence. Nursing Times, online publication. Gaps in the evidence base in healthcare are common, and this is also the case for the management of urinary incontinence. The James Lind Alliance helped patients and clinicians to work together to identify and then prioritise gaps in the evidence base for managing this condition, producing a list of 10 research priorities. This article (PDF) outlines the process involved in reaching this consensus.
Fenton M, Brice A, Chalmers I. Harvesting and publishing patients’ unanswered questions about the effects of treatments. In: Littlejohns P, Rawlins M, eds. Patients, the public and priorities in healthcare. Abingdon, Oxon: Radcliffe, 2009, pp 165-180. To see full chapter click here (PDF) To access the entire book click the following link: http://www.radcliffe-oxford.com/books/bookdetail.aspx?ISBN=1846193877
Scadding J, Chalmers I. The James Lind Alliance: tackling treatment uncertainties together. RSM News, Issue 51, Spring 2009, p 11. click here (PDF)
Firkins L, Setting research priorities: a layman’s experience. BMJ 2008;337:a212. BMJ article (PDF)
Public priorities for medical research and development
13 experts from the government and policy, clinical and patient organisations discussed clinical research at a roundtable discussion hosted by the Health Service Journal with the Association of the British Pharmaceutical Industry. The event aimed to address clinical priorities. To help inform the debate, ABPI commissioned Opinion Leader research to determine where the public believes clinical research priorities should lie, through a combination of survey and group discussion. To see the full HSJ article click here. To see the ABPI summary of research findings click here (PDF)
Chalmers I. Confronting therapeutic ignorance:
Tackling uncertainties about the effects of treatments will help to protect patients.
BMJ 2008;337:a841. BMJ article (PDF)
To see full article click here
Quality of life: the patients' view . HSCNEWS International 2007;39. HSCNEWS Article (PDF)
Patients and the Future of Clinical Trials. HSCNEWS International 2007;38. HSCNEWS Article (PDF)
Buckley B, Kennedy B, Murphy M. Barriers to effective care of incontinence.
Forum March 2007:51-54. Forum Article (PDF)
Buckley B, Grant A, Firkins L, Greene A, Frankau J. Working together to identify research questions. Continence UK 2007;1:1. Continence UK Article (PDF)
Evans I, Thornton H, Chalmers I. Testing treatments: better research for better healthcare. London: British Library, 2006. pdf of this book freely available under a Creative Commons Licence, through www.jameslindlibrary.org
Lloyd K, Rose D, Fenton M. Identifying uncertainties about the effects of treatments for schizophrenia. Journal of Mental Health 2006;15(3):263-268 Journal of Mental Health Article (PDF)
Oliver S, Gray J. A bibliography of research reports about patients', clinicians' and researchers' priorities for new research. London: James Lind Alliance, December 2006. Bibliography (PDF). To find out more about the findings and the implications of the bibliography (click here PDF 70kb).
Firkins L (2006). The James Lind Alliance. GIG Today winter 2005/2006:5 GIG Today Article (PDF)
Patients and researchers: tackling treatment uncertainty together. Health and Social Campaigners' News 2005;24:16-28.HSC News Article (PDF)
Chalmers I. The James Lind Alliance: Clinical trials registration. Health and Social Campaigners' News 2005;22:15-21: HSC News Article (PDF)
Whitton M. The James Lind Alliance: An important initiative in fostering good research practices in all spheres of medicine. Skin Care Campaign News 2005;32:9. SCC News Article (PDF)
Partridge N. Scadding J. The James Lind Alliance: patients and clinicians should jointly identify their priorities for clinical trials. Lancet 2004;364:1923-24.LANCET Article (PDF)
Chalmers I. Well informed uncertainties about the effects of treatments: how should clinicians and patients respond? BMJ 2004;328:475-6. BMJ Article (PDF)
Chalmers I. Managers should help to address important uncertainties about the effects of treatments. BAMM (Britsh Association of Medical Managers) NEWS June 2004:3-4. BAMM Article (PDF)
Confronting Important Uncertainties about the Effects of Treatments. Health and Social Campaigners' News 2004;5: HSC News Article(PDF)
The following are further relevant publication references:
Scadding JW (2006). The James Lind Alliance: an opportunity for neurologists in therapeutic research? Practical Neurology 6:68-71
House of Commons Health Committee. The Influence of the Pharmaceutical Industry. Fourth Report of the Session 2004-2005, Vol. I. London: Stationery Office, April 2005.
Editorial. Dealing with Uncertainty. Clinical Evidence Issue 13. London: BMJ 2005.
Thornton H. Identifying patients' and clincians' priorities in cancer clinical trials. In Rawlins M, Littlejohns P, editors. Delivering Quality in the NHS 2005. Part Four: James Lind Alliance: identifying patients' and clinicians' priorities for therapeutic research. Oxford: Radcliffe Publishing,2005:62-66.
Oliver S. Involving the public in health technology assessment. In Rawlins M, Littlejohns P, editors. Delivering Quality in the NHS 2005. Part Four: James Lind Alliance: identifying patients' and clinicians' priorities for therapeutic research. Oxford: Radcliffe Publishing,2005:57-61.
Jobling R. Therapeutic research into psoriasis: patients' perspectives, priorities and interests. In Rawlins M, Littlejohns P, editors. Delivering Quality in the NHS 2005. Part Four: James Lind Alliance: identifying patients' and clinicians' priorities for therapeutic research. Oxford: Radcliffe Publishing,2005:53-56.
Arnold F. No commercial potential? (nullus pretii). In Rawlins M, Littlejohns P, editors. Delivering Quality in the NHS 2005. Part Four: James Lind Alliance: identifying patients' and clinicians' priorities for therapeutic research. Oxford: Radcliffe Publishing,2005:49-52.