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“Outcomes in clinical research – whose responsibility?”

James Lind Alliance, and the Social Science Research Unit
Thursday 20th November 2008, 10am – 4.15 pm
Institute of Education, University of London

Aims of the seminar:

• Promote debate about the role of patients, clinicians and researchers in determining clinical research outcomes
• Provide examples of Patient Reported Outcome programmes, and Patient Important Outcome programmes
• Explore how best to progress patient engagement in influencing clinical research outcomes
• Promote networking of researchers, patient groups, clinicians, charities, and other funders of health research

Speakers include:

• Chair, Sir Iain Chalmers
• Dr Kirstie Haywood, Royal College of Nursing Research Institute, School of Health and Social Studies, University of Warwick – Patient Reported Outcome studies in ME/Chronic Fatigue and others
• Prof Sandy Oliver, Social Science Research Unit Institute of Education
• Prof Suzy Skevington, (Prof of Psychology, Bath University) lead fieldworker on the WHOQoL initiative - (a generic measure of quality of life)
• Alex Wyke, Director Patient View - Large international survey on outcomes from patient perspectives
• More speakers to be confirmed

To register your interest in this seminar, and receive a booking form please contact: Marty Kilby, Mutfords, Hare Street, Buntingford, Herts, SG9 0ED marty.kilby@virgin.net, Tel: +44 (0)1763 289191, Fax: +44 (0)1763 289888
More details to follow

PROPOSED SEMINARS FOR 2008
Transparency in Research
Joint James Lind Alliance/Association Medical Research Charities/Health Coalition Initiative seminar (The Health Coalition Initiative is a network of voluntary health organisations and pharmaceutical companies. (http://www.healthcoalitioninitiative.org.uk/)).

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